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Support Groups
16,000 people diagnosed with a brain tumour every year
Contact your local support group
This list represents a range of brain tumour support groups for patients and families affected by brain tumours. We thought you'd like to know where they are and how you can contact them. Please note, this list is only as effective as information we've been given at the time of adding it.*
Sadly, diagnoses of brain tumours are increasing so there is always going to be a need for more support groups. If you have a group but it is not shown in our list, please send your details to info@braintumourresearch.org so we can include it.
Location | Meeting Times | More Information |
Belfast | Monthly Second Wednesday of each month except July, August and December. 7:30pm - 9:30pm | Run by Brainwaves 02893 372595 Key co-ordinator: Kate Ferguson |
Bradford | Monthly Get Together The third Wednesday each month 6.15pm – 7.45pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Brain Tumour Support (online) | Brain Tumour Support are currently offering online Support Groups via zoom. | More information can be found on their website www.braintumoursupport.co.uk or by phoning 01454 422701, or emailing support@braintumoursupport.co.uk |
Cambridge The Acoustic Neuroma and Meningioma Network (AMNET) | Quarterly meeting | For patients diagnosed with an acoustic neuroma or vestibular schwannoma brain tumour |
Cork | Contact : | |
Coventry | Monthly | Open to all patients diagnosed with a brain tumour, and families, friends. |
Doncaster |
Monthly Get Together The last Friday of every month 1pm – 3pm
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Run by trained volunteers Contact Emma Garbutt – emma@yorksbtc.org.uk This is a social get together, run by trained volunteers and is open to all, including those who are bereaved
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Doncaster | Monthly Drop In Cafe The second Tuesday each month 11am – 1pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Dublin | Contact: | |
Edinburgh | Monthly | Contact Alice MacGregor |
Galway | Contact: | |
Glasgow | Monthly | Contact Sheena Muir |
Guildford | Monthly | Contact Anne Wittle |
Haywards Heath | Monthly | Please contact either Jill Collins 01444 243492 or Charlotte Tripp 01273 412519 (after 7pm) to confirm your attendance and where to meet. |
Huddersfield | Monthly Meetup The second Wednesday of every month 11am – 1pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Hull | Monthly Drop In Cafe The first Tuesday of every month 11am – 1pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Leeds
| The second Monday of every month 1pm – 2.30pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Leeds East (Gipton) | Monthly The last Wednesday of every month 12noon - 2pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Leeds (Farsley) | Monthly Drop In Cafe The second Saturday of every month 10am – 12noon | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Lincolnshire | Dates vary, check website for details | The group is open to anyone diagnosed with a Primary Brain Tumour either benign or malignant and their partners and carers. Patients should be resident in Lincolnshire and/or treated at United Lincolnshire Hospital Trust (ULHT) |
London | Monthly | Contact Barbara - 0207 188 5918. |
London | Monthly | Support group for low-grade glioma patients, family and friends. Contact Emma Townsley or Orla McKee, Neuro-Oncology Clinical Nurse Specialists, on 0207 3918833 |
Norfolk | Monthly First Thursday each month 1:30pm - 3:30pm | Contact Big C Centre - 01603 286112 or the Oncology Nurse Specialist - 01603 286171 |
Oxford | Quarterly meetings for children with a brain or spinal tumour and their families. (Information day, Fun Day, Pantomine, Adolescent weekend) | Run by Friends of Oscar |
Sheffield | Monthly Meetup The third Saturday of every month 11am – 12.30pm | Run by Yorkshire’s Brain Tumour Charity Contact Christine Beal – christine@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Tamworth | Monthly | Poppy Fields Special Mummies and Daddies. Call Lisa Guilder on 07830 302622 or email lisa.guilder@homecall.co.uk. |
Wakefield | Monthly Drop In Cafe The fourth Thursday of every month 10.30am – 12.30pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
York | Monthly Drop In Cafe The second Thursday of every month 10.30am – 12.30pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Yorkshire wide Location varies each month across Yorkshire | Monthly Wellbeing Walk The second Sunday of every month 11am – 1pm | Run by Yorkshire’s Brain Tumour Charity Contact Marie Peacock – marie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Yorkshire wide (online) Online meeting for those living (or being treated) in Yorkshire | Monthly Online Meetup The first Tuesday of every month 6.30pm – 8pm | Run by Yorkshire’s Brain Tumour Charity Contact Natalie Mawson – natalie@yorksbtc.org.uk Open to all low and high-grade primary brain tumour patients, their carers and family members |
Other helpful organisations where you can receive specific support
Low-grade gliomas
Astro Fund raises money for research into low-grade gliomas and provides support to everyone whose lives are touched by this tumour type through their online support group. For general enquiries telephone: 01485 572767 www.astrofund.org.uk
Pituitary Tumours
Over 40 support groups across the UK run by the Pituitary Foundation www.pituitary.org.uk
*We do not take responsibility for checking the ongoing accuracy of information provided on this page.