National brain tumour research funding needs to increase to £30-35 million a year
Partnership with brainstrust will bring patients closer to research
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Brain Tumour Research is delighted to announce it is funding Member Charity brainstrust’s Patient Research Involvement Movement (PRIME) which is focused on ensuring clinical research projects are aligned with the needs of patients.
Patient and public involvement and engagement (PPI&E) is key to attracting funding for research and PRIME has already helped to attract over £17m of investment by matching scientists and clinical researchers with brain tumour patients.
The vision of brainstrust is for everyone with a brain tumour to feel less afraid, less alone and more in control and, through PRIME, it is bringing people with direct experience of life with a brain tumour into contact with the clinical research community where they can have direct input and help shape studies and secure funding for research and clinical trials.
Helen Bulbeck, Director of Services and Policy at brainstrust, said: “Now, more than ever, people want to be closer to research so that they can feel involved with their care and their condition, ensuring that they understand the landscape, that they can be part of the clinical research agenda and be a transformative force for change”
There is unprecedented demand from the clinical and research community for public input into trial and research proposals. This ensures the goals and methods reflect what people want when they are living with a brain tumour. Funding is now inaccessible without this patient and public perspective.
Helen added: “We do this effectively, attracting significant funding to brain tumour research projects and collaborating with research focused clinical teams with whom we share our expertise and build capacity so that more people can be involved in research.”
For clinical and research communities PRIME streamlines co-production, co-participation and engagement-based activities. It brings together PPI&E managers, coordinators, patients, clinical researchers, underrepresented groups and other stakeholders to support relationship building and inclusivity of communities and participants in research.
Brain Tumour Research’s Director of Research, Policy and Innovation, Dr Karen Noble, said: “Brain tumour patients are at the heart of everything we do and we are very keen to enable meaningful conversations between researchers and patients. To this end we are extremely pleased to be investing in this important collaboration which will help the brain tumour community to feel more involved in shaping the future of research as we work towards our vision of finding a cure for all types of brain tumour.”
To find out more and get involved click here.
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