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In Hope

Just 1% of the national research spend has been allocated to this devastating disease

The diagnosis of a brain tumour is devastating, however there is hope. We have been fortunate to meet some very brave people who have survived to tell the tale and who want to share their story to give hope to others.

Recently published stories

Jude Upton

Ten-year-old Jude Upton was diagnosed with a brain tumour, later identified as a grade 4 medulloblastoma, following a trip to Specsavers on his eighth birthday in March 2020. The youngster, from Milton Keynes in Buckinghamshire, had been suffering from a loss of balance, sickness, headaches, tiredness, a loss of appetite and changes in his personality. He underwent a craniotomy followed by chemotherapy, radiotherapy and further chemo, after which his tumour was stable. Sadly, in March this year, further growth was detected. He’s now completed two more cycles of chemo and is awaiting his next scan. 

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Tom Claypole

In February 2021, Tom Claypole, 40, from Swanwick in Derbyshire, started suffering from constant headaches. Tom, dad to Shadean, 21, and Chardonnay, 17, went to his GP and his local hospital but they all said he had migraines. In August, one of Tom’s colleagues saw him black out while he was driving a van. Shortly after, he fell over and had a seizure. Tom’s fiancé took him straight to hospital where he had an MRI scan which revealed that Tom had a glioblastoma (GBM) brain tumour. Tom’s family has now embarked on a mammoth fundraising venture for Brain Tumour Research, aiming to raise £100,000 in three years.                                        

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Olivia Keegan

Twenty-two-year-old Olivia from Warwickshire had an isolated seizure in 2007, when she was just seven. After a medical check-up at Telford Hospital, she was discharged with no cause for concern. Nine years later, she began to have seizures during the night, waking up not knowing what had happened and these extended into the day. After biting the inside of her mouth during a seizure she was taken to hospital where a scan showed a mass on her brain. Due to the complexity of her tumour, Olivia’s diagnosis is thought to be a low-grade glioma or dysembryoplastic neuroepithelial tumour (DNET) after five years of clear scans, she remains on watch and wait.

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All stories

Kaite Bourgeois

Radiotherapy graduate Kaite’s surgery to remove an acoustic neuroma brain tumour was delayed because of lockdown. Ahead of the operation this autumn, Katie is preparing herself physically and mentally by taking on a series of daily Walks of Hope to raise money for the charity Brain Tumour Research.

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Karen Bucknall

When Karen Bucknall underwent a full hysterectomy in 2015, she thought it would mark the end of her health problems which, up to that point, had included fibroids, cysts and a low-grade tumour on her uterus. However, the worst was yet to come for the former holiday rep and air hostess. The following year she was diagnosed with a low-grade brain tumour and in 2019, Karen was discovered to have stage 3 bowel cancer. Doctors have since found another low-grade tumour in Karen’s brain, which is likely to need removing with surgery. In spite of her poor health, the 51-year-old has managed to fulfil her lifelong dream of moving to the Cotswolds and she has just completed a diploma in travel writing and journalism.  

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Karen Eggleston

Karen Eggleston’s grade 1 olfactory groove meningioma was discovered after she suffered a seizure at home and went into cardiac arrest in June 2020, flatlining for about 10 minutes. She had been exhibiting strange behaviour for some time but the shocking discovery was made whilst brain scans were being carried out to check for any damage her brain had sustained during the 10 minutes she was without oxygen. When she came to in hospital a week after having a craniotomy, she had no memory of the seven months leading up to her collapse, including the emergence of the COVID-19 pandemic, and many other things in the months prior, such as the UK’s change of prime minister. The 50-year-old organisational development consultant, from Westerham in Kent, also found herself completely blind in her left eye and visually impaired in her right eye. She went on to have radiotherapy and is now being monitored with annual scans having been given the ‘all-clear’. 

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Kathrine Gaddas

When mum-of-two Kathrine Gaddas, from North Yorkshire, first began suffering from brain tumour symptoms in early 2019, doctors initially thought they may have been caused by anxiety. It wasn’t until she had a seizure in the supermarket where she works in July that year, that she was sent for a scan, which revealed a glioma in her left temporal lobe. The 36-year-old checkout operator has since had surgery to remove the tumour and, thankfully, has recovered well. Having returned to work at the beginning of 2020, the Morrisons employee is turning to fundraising, as she wants to give something back after her ordeal. 

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Katie Beer

Katie’s diagnosis with a low-grade glioma had a huge impact on her emotional health. Located on her brainstem, the tumour is inoperable and incurable, and she lives with the knowledge that it could become aggressive and impact her daily functioning. Faced with such devastating news, Katie, 50, and her partner Kate decided to arrange a date for their dream wedding, having been together for more than four years. The couple will hold a raffle in aid of Brain Tumour Research on their big day – a charity which funds a research centre in Katie’s hometown of Plymouth.

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Katie Galan-Wilkinson

Katie Galan-Wilkinson is a 37-year-old mother-of-three from Ilminster in Somerset. Katie’s labour was induced after her brain tumour diagnosis came in the late stages of her pregnancy. She has undergone surgery to remove a grade 3 anaplastic astrocytoma. Having been through a course of radiotherapy and chemotherapy treatment during the COVID-19 pandemic, she now has regular scans to monitor her health.

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Katie Milliken

Katie had only been at nursery for a few short weeks when she was diagnosed with a brain tumour. Within hours she was undergoing emergency surgery but the tumour, although low-grade, is buried deep within her brain making it inoperable. She has endured 18 months of chemotherapy and three months of specialist radiotherapy in America which proved unsuccessful. Once again she is back on chemo and no-one knows what the future may bring.

“Life is so precious and, for us, fragile. We try not to look too far ahead and cling onto the fact that, with research, every day presents the possibility of better treatment options for Katie in the future. It is vital that we have hope and that we live in the moment but I do find it so incredibly hard to do. One of the biggest changes we have had to make since Katie’s diagnosis is to live with uncertainty, it is awful because nobody can tell us what the future holds.”

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Katie Paterson

Eight-year-old Katie Paterson, from North Lanarkshire, was diagnosed with a brain tumour in December 2020, after experiencing vomiting, clumsiness and pain in her back. Brave Katie has since been through two surgeries, radiotherapy and is now on a gruelling course of chemotherapy. As COVID-19 restrictions begin to ease across Scotland, Katie and her parents continue to shield, to try to protect Katie while her immune system is weakened, due to the cancer treatment she is receiving. 

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Katie Smith

Special needs teacher Katie Smith, 31, was struck down with debilitating headaches just weeks after returning from her honeymoon. After numerous visits to the doctor and hospital appointments, her symptoms were finally diagnosed as a brain tumour and Katie was given the agonising prognosis that she may not live to see her 40th birthday. Together with her mum who is battling Non-Hodgkin lymphoma, Katie has written a bucket list and has been able to cross off “publish a book” after winning a children’s writing competition launched by ITV’s Lorraine Kelly. Together with husband Luke, she is facing a dilemma over whether to go ahead with their plans to start a family.

“I feel we need something to live for but do I really want to bring a child into the world knowing that, potentially, it’s going to lose its mum at a young age? Or perhaps we should try to live our lives the way we would have done had we not known about the brain tumour. In order to protect the unborn child, you can’t have an MRI scan until you have passed the 12-week mark. The hormones of pregnancy could cause the tumour to grow and, if it came to it, would I choose myself over my baby? It is impossible to imagine, although I know what Luke would say. I had always imagined myself with three kids but now we will be lucky to have one. It is a very tough decision and one which we will make together.”
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Katie Symmons

Katie was diagnosed with a grade 3 meningioma brain tumour in October 2014, aged 30. After two craniotomies and radiotherapy, as well as months spent learning to regain her ability to walk and speak, Katie has been told she has months to live. Her dearest wish is to be allowed more time with her beloved husband Steven, who has devotedly cared for her over this traumatic seven-year-period.

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